Parenting A Child With Down Syndrome – There’s no way, it’s hard for everyone to deal with dementia. But if you are the parent of a child with special needs, this time can be even more stressful and scary. I believe the key to helping our children deal with and adapt to the changes they face is to honestly model our own feelings for them. Our children want us to be strong for them, but we need to be honest with them, to tell them that it’s okay to be sad and scared.
No way, it’s a tough time for everyone. But if you are the parent of a child with special needs, this time can be even more stressful and scary. Some of us have children whose conditions indicate a high risk of medical complications from the coronavirus, COVID-19. Many of us have pulled our children from schools where we have spent countless hours making sure their IEPs (Individual Education Plans) are created to ensure they receive the care and education they deserve. let it bloom and blossom. Many of us have turned off medications to limit our child’s exposure to others. We are not sure how long this will continue, how it will affect our child’s health, and if we stop treatment for a long time we will lose these services. Some of us stay at home with kids that require a lot of physical care, and we’ve missed out on some form of rest in the past. Some of us cannot stay at home to take care of our children during the day, but struggle to find ways to care for them. Some of us have to consider the benefits of the necessary arrangements for the risk of travel and the increased risk of COVID-19. Some worry that medicines and medical equipment are in short supply.
Parenting A Child With Down Syndrome
If you are like me, you need to learn to fight isolation and find support and connection. Support groups, meetings, events, and even church have all been canceled. The memories that appear on my computer are like a cruel joke. The memory of life before this coronavirus pandemic went from something I heard on the news to something that shook my reality and my actions.
About Down Syndrome
Then there are our children, many of whom do not understand the reason for the sudden change in their lives. These are children who need structure, routine, and repetition to manage anxiety and behavior. If we parents feel the stress of this age, why can’t we give our precious children who need answers, like time their lives will return to their lives. They are missing the faces and voices of the teachers, counselors and therapists who have become close family to them.
How can we help our children in this day and age, especially those with special needs, as we ourselves face the unknown and the not sure?
I believe the key to helping our children deal with and adapt to the changes they face is to honestly model our own feelings for them. Our children want us to be strong for them, but we need to be honest with them, to tell them that it’s okay to be sad and scared. We need to think about living our faith before them. By sending them a message with our words and actions that we are Christians not only will we not be afraid, but we will not be attached to them. The Bible tells us to “cast all our thoughts on God, for he cares for us.” ( Peter 1, 5:7 ) Our eldest son is struggling with anxiety. He is always looking forward to the next things he has planned. Knowing his schedule (and our entire household) gives him control. Being alone, not seeing the people he used to see, was very difficult for him. Every child responds to change in their own way, and I believe our job as parents is to look for clues about what is going on in their hearts and minds. Instead of getting rid of their frustration and angering their brokenness, I think it’s time for them to know that they can talk to us. If your child is non-verbal, this means showing them some feelings, reassuring them, and just being with them. I know for most of us our lives have changed, so it’s easier said than done, but try to give your kids some predictability in their day. It could be something as small as playing one song every morning or reading one book every night before bed. It’s a happy and bright time right now. Find it, build it, and send your kids there with you.
I think all of us, as parents of children with special needs, can remember at one point in time a big change in our entire lives. We all remember life before the death of our children painted our pictures, disrupted our plans and changed our perspectives. I’m sure if we were all in a room together telling our stories, we would all feel the same emotion that comes from the fear of the unknown. I know that God used my children and their special needs to teach me how fragile and important life is and never to be taken for granted. They taught us that there are no guarantees in this life. There is a time for regret and a time for acceptance. They taught us to find beauty in broken and scary places. They taught us to believe that God’s power and grace will overcome our weakness. More than anything, my children have taught me that life is short and that there is freedom in letting go and accepting the truth that is good. God even without our way of life.
Symptoms Of Down Syndrome In Babies And Children
I believe we can protect our children, but we must not be afraid. I hope we can wipe away our tears and trust in God’s unchanging love to carry us through the unknown. I believe we can take this one day at a time. I hope we can look our children in the eye and be reminded of God’s truth, trusting that He will make this sad time a moment of celebration, because that is not the truth that has been sown in all our history.
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